Monday, November 28, 2011

"I need a needle"

Those four magical words are not ones I expected my 2 1/2 year old to say. Zander woke up earlier in the day complaining about his knee hurting, I thought he napped on it funny but later that night he started to cry (randomly). He was grabbing his knee and he came over to me and said, "I need a needle!" I was very surprised: this was a first. We have had other times where I ask him, "Do you need a needle?" Sometimes he says yes and sometimes he says no. But he was adamant that he needed a needle. So, we infused him. He seemed okay and went to bed a happy camper. There were no issues to speak of the next day. I am not sure if he was having a bleed, I am not sure if he "needed" factor, but we have it and we can give it. I think it is important to show him that this is his body and his disease and if he felt like he needed a needle, then by all means a needle he will have.

Tuesday, November 22, 2011

Prophy (we're back)

Zander is back! It is funny as a result of his downward spiral with prophy we started some new traditions and some have stuck (ha ha no pun intended) and some have gone away as he is just laying there again. Here is a little video of one thing we do each time we infuse...it makes me smile. Let me clarify a couple of things, when I ask, "What are you going to do with your hands, legs and mouth?"...he shows me what he is NOT going to do. My favorite is what he is not going to do with his mouth...

video