what does that bloody mean?

bleeding disorders:
several chronic health conditions in which the body does not clot properly, resulting in excessive or lengthy bleeding.

breakthrough bleed:
bleeding between infusions of factor product.

a person who has the gene for a condition, but does not necessarily display the symptoms.

clotting factors:
proteins in the blood that act in sequence to stop bleeding and form a clot.

factor product:
treatment that is infused to replace the body’s missing clotting proteins. It is made from plasma or recombinant products.

factor deficiencies:
bleeding disorders identified by the missing clotting factor. They include factors I, II, V, VII, VIII, IX, X, XI, XII and XIII.

factor I deficiency:
a rare bleeding disorder caused by deficient or defective fibrinogen.

factor II deficiency:
an extremely rare bleeding disorder caused by a deficiency of prothrombin.

factor V deficiency:
a rare bleeding disorder caused by a deficiency of factor V protein.

factor VII deficiency:
the most common rare bleeding disorder, caused by a deficiency of factor VII protein. It is usually severe.

factor VIII deficiency:
A deficiency or absence of factor VIII. The most common form of hemophilia, also called “classic hemophilia.” Also called hemophilia A

factor IX deficiency:
a deficiency or absence of factor IX. Also called “Christmas disease” after the first family diagnosed with the condition. Also called hemophilia B.

factor X deficiency:
a rare bleeding disorder caused by a deficiency of factor X protein, which activates enzymes that help form a clot.

factor XI deficiency:
also called hemophilia C.

factor XII deficiency:
a rare bleeding disorder. Most people who have it do not experience bleeds.

factor XIII deficiency:
the rarest bleeding disorder, caused by the deficiency of

factor VIII protein:
which stabilizes the clot.

the time it takes for half the quantity of factor or factor product to be eliminated from blood plasma.

bleeding into a joint.

a physician specializing in disorders of the blood.

mild hemophilia:
a factor VIII or IX level ranging from 5% to 40% of normal blood levels.

moderate hemophilia:
a factor VIII or IX level ranging from 1% to 5% of normal blood levels.

severe hemophilia:
a factor VIII or IX level below 1% of normal blood levels.

hemophilia treatment centers (HTCs):
a group of federally funded hospitals that specialize in treating patients with bleeding disorders.

delivering clotting factor concentrate directly into a vein.

an antibody to infused clotting factor concentrates, making standard treatments ineffective.

intracranial hemorrhage:
a bleed into the brain.

lifetime cap:
a spending limit on insurance benefits. Once it is reached, the policy no longer provides coverage.

National Hemophilia Foundation:
a nonprofit organization founded in 1948 to serve the bleeding disorders community.

a device that delivers intravenous drugs. It is usually implanted under the skin in the chest.

a treatment regimen to prevent bleeds.

recombinant product:
genetically engineered factor product made without human blood products, decreasing the risk of transmission of bloodborne infections.

target joint:
a joint that has had repeated bleeds, or at least four bleeds within a six-month period.