Sterile technique and a Nigerian beat

Today we did our first solo infusion via Harris port.  We did so good. Seriously.  Derek was able to hold/restrain him by himself and I don't even flinch anymore when I stick him.  (Kinda morbid, but there you have it.)  Harris still cries when we hold him down, but he cries when I hold him down for a diaper change too, so...

Upon the advise of our hemo nurse, we played some of Harris' favorite music during the infusion to see if it would help him stay calm.  Once we got the needle in and he realized that it was not so bad, he stopped crying and let the Nigerian rhythms fill him up.  Mormon Tabernacle Choir:1  Harris:0.

Monday we're rocking it old school. Rad.



Good luck little Harris.  May all of your infusions be fast and all of your factor be clean.
-Mom

Access... 2.0

I have conquered the Huber needle and infused my son for the first time today.  It was better than last time.  I put the numbing cream on at our house before we headed to the center.  (I didn't have any of those big, clear bandage things that they use to hold the cream in place, so I used Saran Wrap and tape.  Not pretty, but effective nonetheless.)  It seems to have worked well.  Harris cried the whole time that we had him pinned to the table, but he didn't cry any worse when I stuck him, so I call that victory.

I am, as always, so grateful for our amazing HTC team.  Our staff is the best, best, best ever.  Their support is the reason that this journey to independence is moving forward in a (mostly) smooth way.

Yay.