Showing posts with label hemophilia. Show all posts
Showing posts with label hemophilia. Show all posts

Monday, June 14, 2010

The Good sister

Ok,
So my sister Endre wrote about guilt, and not having any when her son was born. (This is why I tiltled this blog, "the good sister". Totally joking of course. My sisters are great moms...:)) I on the other hand, felt a ton of guilt when jack was born. I felt so responsible for giving him this disease. I panicked at the thought of what his life might be like, the pain he would feel, the teasing he might have to endure;or even what he might miss out on. I soon realized (after a few infusions) that i could feel sad for the pain he might be feeling, but this was his life, and i needed to change my attitude about it. I could do more good for him than anyone else. I could help him get comfortable before his infusions, I could educate him about his disease, and teach him how to live with hemophilia, but not let it define him. So yes, I felt tremendous guilt...at first, but not anymore. In the end, everyone copes differently with a newborn with hemophilia. We all progress in stages. So whatever you experience its cool...life goes on.

awny (sister #3)