Saturday, April 28, 2012
Tuesday, April 17, 2012
HFA's website. There are funding resources available for many types of education and all types of people within the bleeding disorders community including care givers, siblings and carriers.
Education is the key to expanding life choices. Visit the link above to explore some ways to help finance your's or your child's schooling.
Posted by e. at 1:14 PM
Sunday, April 15, 2012
Zander doesn't mind getting his needle day and I wish I could say it is solely because it makes his body feel so much better. But sometimes it is just because he wants to watch a show. I know this because sometimes he wants to watch a show and I say no, then he sneakily responds, "Oh, ow, I need a needle..." I can't remember what started this song, but it cracked me up.
Friday, April 6, 2012
I just finished reading a book, "Dr. Guilt?" (about many families from Oregon, affected with hemophilia, good read, made me cry a lot). I read something in the book that made me feel like I am not crazy when it comes to Zander's bleeds. He will be active all day (boarder line crazy) and when we get in bed and he falls asleep, he will wake up screaming and crying and holding which ever body part is hurting (usually his right knee). He tells us he needs his needle day. A couple of the boys in the book had this same thing happen. Apparently, sometimes being up and going you feel fine, but when your body relaxes, the bleeding into the joint can be felt. I know this wont happen to everyone, but it is good to know Zander isn't alone.