Friday, October 15, 2010

Port or bust

Zander is now a proud owner of a Port. His surgery went really well and on the outside Zander appeared to be perfect....but that is not what the labs were showing. Zander's factor levels were getting down pretty low, we started with doing factor every eight hours. When his levels stayed low it meant we had to stay an extra night in the hospital. We also went to doing factor every six hours, which meant he was getting about 2000 units of factor a day. To give you an idea of how much that is, our nephew Jack gets around 1500 units of factor for his prophy and he is eight years old. We aren't sure if this means Zander's sneaky inhibitor is still lurking around or if Zander just metabolizes factor that fast. When Zander's levels started being a little more consistent we were able to go home. We are still doing factor three times a day and will do another recovery study on Monday to see if we can drop that down to two.

The top picture is before his surgery (bright and early).
This is Zander after his surgery.

Here Zander is in the push car, we put A LOT of miles on this car.


Here he is making a break for it...

playing on the playground at the hospital (same day as his surgery).

showing off his new cool scar!

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