Thursday, June 10, 2010


Today my son Jack had a routine MRI done. The last time he had this done was in 2008. Jack has to alternate between chest x-rays and MRI's every year. This is done to check the placement of the port and all the "stuff" that goes along with having a port. Its not a bad thing, but it can be scary for a little kid. We have had great success with Jacks port. he had it put in when he was two, and it has been wonderful. We have had no infection or worries.

Like I said before, these procedures can be nerve racking for a kid. One thing I have learned as a mother with a hemophiliac child is to always be upfront and honest with them about everything. Yes, you will get a shot and it will hurt....but only for a second. The machine will be loud and you will have to hold very still. I have always told all of my children, not just Jack, exactly what will happen when we go to the doc. There will be lots of pokes, pricks, needles, and tears; but it is better to go in as a team with your childs trust, than to battle it out at every procedure. This is the Bloody Good Life of a hemophiliac. (just as a side note, Jack has done his MRI without sedation each time, and has done beautifully.) attached to this is a video of Jack explaining in his own words, just what it was like today.

Awny and Jack


  1. Way to go Jack! You are a lot more brave than me because I DO NOT like to get an MRI!! Glad to have you on the blog can't wait to see you again.

  2. Good job Jack! I am so proud of you and your brother and sister who support you and help your mom alot. You will be a good example to the little boys in the family. Love you.

  3. What a brave little toaster!!! =) He is fantastic. Listening to him makes me feel like getting an MRI wouldn't be too big of a deal. I am glad you are blogging on this blog now too; it will be good to hear about Jack's adventures with Hemophilia.